^ A collage I made of some of favorite moments from my first 10 day Inpatient Ketamine Infusions, April 2010. As luck would have it, my little (though much bigger) brother was in Philadelphia at the same time on business- got to see him for the first time in yearrrrrrrrrrrrrrs. Didn’t remember it too much sadly 😦 Two AMAZINGLY generous , selfless women ( who also both have RSD!) Heather and Susie flew in from their respective states, Rhode Island and Texas at their own expenses to help me through my infusions. Susie took the first week, Heather took the second. My first friend in this life- Scotty also lives in Philly and I got to spend some time with him ! My mom and dad were with me off and on. Mom mostly on, dad mostly off. My sisters stopped in and my family (bottom center) stopped in over Natalia’s sectional weekend which I got to watch via webcam- the gym skyped me in ( got special permission) because I wasn’t allowed to be there during treatment and it broke my heart. I had never missed any of her competitions prior to that. My husband and my children were not with me during my 10 day. I only saw them that day and again at the end of my infusions. We did skype several times during my treatments when I was lucid enough for conversations. Though Natalia will tell a completely different story.
That first round of infusions was made possible by the kindness of my facebook friends, friends in this incredible community , people from my churches ( old and new ) and yes, even strangers. The money from those fundraisers carried me through to this year. I turned a few special treatments away. But basically, we made it work. And I am so very grateful.
Hope for Hope basket bingo was held yesterday. I can’t even begin to describe the emotions that go along with being on the receiving end of something like that-a charity event of that magnitude. How do you even begin to thank the people involved in helping to keep you “in the game” for the next year or two ? for the countless hours of work involved in organizing something like that? The blood, the sweat and yes, the tears. (though most of the tears were mine!)
To my delight, my event was like a long overdue high school reunion. Most of the people who came out to support me were friends from my high school days, some old friends from church and family of course, and some friends of my parents that I hadn’t seen in quite a number of years. It was like “going home”.
I was overwhelmed with the generosity of local merchants and especially my baseball family, Berkshire Baseball who went above and beyond for myself and my family.
I am still trying to digest it all.
The organizers of my event, Trinity’s Helping Hands, were even generous enough to allow me to save the leftover beverages and non perishables to take to the event that I help out with in a few weeks called “The Cups of Compassion” for the homeless people in the city of Reading ( I blogged about that previously.)
Though I still have mixed feelings about having allowed my father to have spearheaded this for me, I felt a little bit better after remembering something I read rather recently. I shared it as a status on my facebook yesterday. It’s from a book that a friend of mine wrote. His name is Dan Clouser. Dan is the president of Berkshire Baseball and one of the most generous people I have had the good fortune to meet in this lifetime. Mr C is a neat man. He is generally quiet and very unassuming. But his smile and laughter are so contagious. His book is called ” The Beauty of A Diamond ~ Through the Eyes of a Coach.” It is a must read for parents, coaches, players, heck, for human beings in general.
Anyway, it goes something like this ~ “The important thing to understand is that everyone in this world has been helped by someone along the way. No one here can simply go it alone. We may try from time to time, but we all depend on someone along the way. The sooner we all understand that, the world will be a much better place.” ~ Dan Clouser The Beauty of a Diamond , through the eyes of a coach
Yesterday was a very long day, physically and emotionally. As I (literally) crawled into my bed, I fluffed my pillows and got distracted by a lovely bright red ladybug. I always seem to find them on “special” days….. Or, perhaps, they find me. ❤