365 Challenge- Day Feb #7 – My View

Day Feb #7 – My View

 

This is the view from my office window in my house.

These lights have been hanging in this tree since the day we bought our house.

12 years ago.

I have no reasonable explanation as to why we never took them down.

They don’t work. They haven’t since we moved in.

They have never actually been plugged into anything from what we could tell.

They just hang there.

Sometimes I don’t even “see them” any more.

My view differs from my husband’s.

I have always felt that they should come down.

He thinks that they aren’t hurting anything so why bother.

So , they continue to just hang there.

For 12 years.

Check back in 12 years, they’ll probably still be there.

My view.

Day Feb #7- My View.

 

365 Challenge- Day Feb #5 – Arrangement

Feb #5 Arrangement..

Which I should subtitle ORDEAL.

“At what price beauty? ”

I think you have to be a woman to appreciate this one.

I pull a brush or two out of a drawer, and if I’m lucky they make it back into the drawer. Maybe that same day even!

Not this gal.. She’s got quite the ” ARRANGEMENT”.

And don’t mess with it.

 

This was one of the new Vintage lenses. But now I forget which one. I should’ve written it down. Sorry Marc.

The Sort of Hope Who $u<k$ Less At Basketball (than I did just a few months ago! :)

Nothing will work unless you do.

 John Wooden

And working I have been! (at my photography, any way.)

I didn’t want my poor neglected blog ‘s friends to think that I’ve just been sitting around eating bon bon’s waiting to not fulfill my commitment to the pictures for the 365 Challenge. Au Contraire!

I’ve been quite the busy little sick gal. I’ve been working so diligently at trying to get better at my basketball shots. Photos that is. A Michael Jordan I will never be. Just as I’ve been working hard, so have our basketball teams. Our boys and girls have both made County play offs – So proud of them!

Which means that I will even get the opportunity for extended practice this season. I didn’t want to bore you all with shots every time I took some , but here are a few that I just decided were post -worthy.

If I were a bit more clever, and had a bit more time, and hand strength left, I’d set it to some really balling music and video up for your viewing pleasure. But I’m not feeling very clever, I don’t have the time and my hands are a lost cause this close to treatment.

Hope you enjoy viewing them as much as I have enjoyed taking them nonetheless!

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365 Challenge – A few days…

Life is flying by me.

Which is good and bad I suppose.

We are painting Natalia’s room. She had gotten a gift certificate from my sister for an occasion that I can’t even remember- a birthday? Christmas? and she chose the color last summer. It’s been sitting in our garage ever since. Finding free time to paint has been quite an issue. This gal’s schedule must rival the President’s. School til 230. Then Cheer for 2 hours then home just to eat then gymnastic’s for 2 more hours. That’s only if there isn’t a basketball game.

Having Nick help to drive has been an asset but baseball practice started for him which also pulls him and his father away which goes back to it just being me again.

I don’t know how these kids keep up.

I honestly wonder how I do it sometimes, too.  Lately more so than ever.

I am the only person in the house who is doing laundry, cleaning , cooking , running the errands and finishing the paint right now. I know I’m not telling the women of the world ( and some men) things that they don’t already know. I just needed a place to vent. Our dishwasher is broken (in addition to the stove, and the microwave, and the fan above the stove.. and the… ) and my husband is in no hurry to fix it. I therefore believe that he should be the one to do the dishes.. Makes sense, right? Somehow it’s not working out that way. And he certainly doesn’t have a disease that affects his hands quite like mine does. The kids were home for one day and I asked Nick to do the dishes while Natalia and I painted. That went over well. I told Nick that maybe his father is just confused about what decade it is because I wear aprons in the kitchen,that maybe he thinks dishwashers just haven’t been invented yet… ?!?  I think I may have to stop wearing aprons for a while. See if it changes things. I’m open to suggestions.

Anyway… I am still trying to stay on top of my photo group challenges. But I’m failing miserably.

Here are day #27 – outside

and Day #28 -inside.

Sunday – #27 Outside– we had a snow day. I took a break from painting and looked out of our window and saw those footprints. I was so confused. Which way was this person going and exactly *how*were they walking? what happened to the rest of  their footprints?

Of course I had to take pictures while we were painting..

So , Day #28- Inside-

You’ll notice we painted “inside” Natalia’s room. You also may notice up in the corner that some of us had a bit of difficulty painting inside the lines. And that’s OK. “it gives it character” … Right gals? 😉

When people ask me what color Natalia chose to paint her room the best descriptive I can use is ” Tiffany box blue” . I find that almost 90 % of women can recall what I mean immediately. Tiffany box blue is an iconic color. It’s more than just a color .. it’s a dream for many a little girl, too. My daughter picked that color along with black trim and some black and white carpet/ curtains and has unknowingly made herself her own little Tiffany box!

Two wonderful women in my life sent me a gift from Tiffany’s as a special , *very* special gift when I first started treatment. It was a horseshoe necklace.. to “let the luck fall in”…. (you may have seen this photo before – as self portrait I did as a tribute to those 2 amazing women.2 special gals who helped me get through those first 10 days of treatment.)

Getting that beloved blue box in the mail was such an incredible experience for me. I hope someday to be able to do that for others, for my daughter, too. But for now, this was as close as I could get…

I know it won’t mean nearly the same thing to her, but I sure loved seeing the smiles on her face the painting days! And as fast as the days are going right now, I’ll treasure each and every one of them while I can.

 

 

365 Challenge- Day #21 Dream

 

“So, if I dream I have you, I have you,
For all our joys are but fantastical…”

Elegy X: The Dream,  John Donne

 

365 Challenge #15 Confusing

I promised myself that this year I would try to learn as many new things as I could.

To push my brain to it’s limits.

RSD patients can be found to have  damage to the same parts of their brains as stroke victims or Alzheimer patients. Part of my testing for my ketamine infusions made me all to aware of just how far my condition has messed with my brain. Part of the very reason that we have RSD at all is because the wiring in our brains has some how gotten all messed up and the pain signals have become confused somewhere along the way. Thereby making the simplest little tasks sometimes very challenging.

This little project took me almost 3 hours. Interrupted by making dinner, but three hours nonetheless. I was so confused while I was trying to do it. But I did it. And my brain held up. Now I’m just exhausted. It’s not perfect nor exactly how I really wanted it, which was the hardest part for me- allowing myself to say something was finished before I considered it “perfect.”  Nonetheless, I was so proud of myself when I finished it. Though it was very difficult for me to complete this task, very confusing, I did it!  Just don’t ask me to do it again 😉

 

– PS- I should get “bonus points” – because this photo is of my teenage daughter and though she is beautiful and I love her, teenage girls are nothing if not confusing!!

 

Day #15 Confusing

365 Challenge Day #11- Signature

Day #11- Signature.

“Red hair, sir, in my opinion, is dangerous.”

― P.G. Wodehouse, Very Good, Jeeves!

I ‘ve pretty much always had red hair. When I was younger it was a beautiful dark auburn red. Of course, as we age, things change and like it or not, if we wish to keep living, we must change with them. I decided very early that even though my red hair was being taken from me, I would do whatever it took to keep it red. (Thankfully my sister is a hair dresser!) Though I have often envied women who have gone from blonde to brunette and back again, I really never wanted to be one of them.

I. am. a. redhead.

My children tease me that if I ever stopped being a redhead they would never be able to find me anywhere again. My red hair definitely suits my personality, too. I am temperamental, moody and bitchy beyond belief. I am stubborn, strong- willed and “spirited”, passionate (in all senses of the word.) I have a friend from years ago who told me once that I’ve got “moxie” . (made me giggle.) and I suppose he’s right. I’m pretty mellow until you push me too far. My personality, just like my hair color, is high maintenance, too.

Naturally, given the “challenge” of thinking of  “Signature” , the very first thing that came to my head ( haha) was my red hair. It is undoubtedly my signature.

Redheads banned from Donating Sperm! (6 fiery facts about Redheads)

4 Surprising Facts About The Color Red

all about red

365 Project- Day #10 Game

With “June-uary’s?” temps going from 30 to 60 degrees in less than a day, Mother Nature is playing a wonderful game of Peek-a-boo with me-right in my own backyard!

Day #10- Game.

( I thought everyone would be expecting a baseball photo, or a basketball photo, or cheer or even gymnastics, so I decided I’d throw you all off! This one is for my MOM, the quintessential goddess of the garden, dirt and all things spring. <3)

The Sort of Hope Who Has A Daughter That Can Fly

Natalia’s first gymnastic competition was on Saturday. She competed last year as a Level 7 USA Gymnast and this year is now an Advanced Prep Optional ( it’s a level for girls who don’t quite have all the skills for Level 8 or those who for whatever reason just aren’t ready to compete the next compulsory level  quite yet. )

We could not have been more pleased with her performance! Gymnastics is such a fascinating sport to me. These girls train so intensely. I can’t wait for competition season so that I can be surprised by all of the new tricks that  Natalia and her teammates have mastered during the off season. This year was no exception. Natalia has added a layout full twist to her floor routine. Floor is my favorite thing to watch the girls compete and I honestly think it’s the thing that our gym tends to excel at the most consistently.

Yesterday was no exception. Natalia ended up doing very well for her first meet- she placed First All Around (36.00). Captured a 1st on beam (9.3) and floor (9.25), and a first on bars (8.95) and a third on vault (8.5).

There was a bit of a some excitement and a resurgence of interest in gymnastics last year following the Olympics. I could not have been happier for the girls at the gym. I feel like what these gymnasts go through is sometimes underrated and under-appreciated and surely under-valued because it is not a school sport. I get upset because I personally think that they don’t get the recognition that I feel they deserve. If people knew how much work these girls put into learning just one simple ‘trick’, maybe they’d value the sport a bit more. These girls are true athletes. Hours and hours spent in a gym to master their craft. They have to be braver and stronger and even more courageous than most other athletes. Fear is a word that they check at the door.

Competition days are difficult for me. (though surely nothing like they are for the gymnasts!) They often involve long rides in the car, sitting for hours on cold hard bleachers and then long rides home again. We never eat right. Traveling with me is like traveling with a toddler. I ‘ve got my “goody bag”- water, snacks, socks, meds, music -for distraction if the pain gets bad, pillows, blankets, gloves… If you’ve learned anything by now, you know that things like travel and long days I don’t get along real well, but the only times I have missed her meets were because of treatments. If it were up to me, I’d watch her and her team compete every weekend! I’ll just deal with a longer recovery time afterward. She won’t be competing forever and while she is , I’m going to do my darndest to make sure when she looks up, she sees her mom in the crowd.

I’m not sure why, but yesterday I really struggled to photograph this event. Out of practice maybe? You cannot use flash in a gym, the lighting is typically even worse than in a school gym. Gymnasts move fast. Very fast. This was the first meet with all new routines so I wasn’t sure how to follow them. AND to complicate the process, for every event but the beam, I was shooting through the safety bars of the balcony. I did manage to get a few decent shots of each event.

Special thanks to my two photographer friends for responding to my panicked texts about how to try to take the shots from that meet. (and understanding that sometimes my panic is born of my disease and my over active nervous system making me forget every thing I already know!) You guys are life savers to me. Truly.

Anyway, for those of you who don’t have amazingly talented people who fly through the air with the greatest of ease, allow me to share mine! The girls of FGI. It’s a pretty short season – States is March 16- and our gym only competes about 5 meets- so enjoy these girls with me. They really are something special.

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The Sort of Hope Who Lived in 2012

My how times have changed. Mike and I are enjoying a fabulous stir fry that I’ve prepared at home, our very quiet home and now the children are the ones who are out, and we are the ones staying in,  owed in part to this cold I can’t seem to shake. But it’s no big deal, I never cared much for New Year’s Eve anyway. I feel like it’s rookie night. All the prices go up, and the people who never party go out. Not for me, thanks. Give me my pj’s and the quiet. I don’t need the noise and the crowds.

I’ll stay home and watch the recaps. Read about words we don’t want to make it to 2013.. like Yolo (eew) or fiscal cliff. I’ll lament the passing of my treasured light bulbs. I’ll thank the Myans for being wrong. I’ll say a little prayer for all of the innocent children of Sandy Hook and the other victims of terrible, senseless crimes this year ( like Mike’s young cousin Timmy, a murder victim back in Feb of 2012). I’ll continue to think about the people still rebuilding from Super Storm Sandy.

And I’ll praise women like Jennifer Livingston the news anchor who stood up to the bully who called her fat.  ( I blogged about that before here: read on for more..) I’ll be thankful that her words went viral in a matter of hours. I’ll be hopeful that perhaps just one girl will listen. Hopeful that perhaps just one self image of a fragile teen age girl will be saved. Hopeful that maybe 2013 will be the year we can knock social media bullying down a few pegs.

thank you Kevin Brett of Soul Imagery for allowing me to edit this.

And then, because a woman who has walked a mile in my shoes has finally convinced me to stop looking at all things I can’t do and instead celebrate the things I’ve done, I’ll look at what I’ve managed to be a part of in this past year.

2012.. my highlights.

I was somehow able to keep up with my tumble off champ, my All Berks/ All State Player, my Level 7 USA Gymnast who medaled many times, my HS cheerleader/2 time tumble off champ, another NHS member, My Summer Love- (Schuylkill Berks Legion League Berks Co Div Champs )~oh what a season~! , a 2 x Tourny Winning 18Y Berkshire Showcase Team, a permitted driver to a licensed driver. Natalia turned 14 Nick turned 16. Seems impossible. What am I forgetting?

On my birthday I said good bye to the family Jeepster. Jeepster had been a part of our family for nearly a decade. I have yet to replace it.

In 2012 I personally loved a few and lost a few – {my ball buddy ~ “you know what I mean?” },  flew to South Dakota for my first vacation in years, spent 7 whole days with the James Gang & saw my brother get married. Was able to once again participate in Cups of Compassion and feel what it really means to give of one’s self.

Sadly, I’m still learning that no matter what you think, no one or anything is ever truly as it seems and that people can still manage to surprise you even after 40.

I’m thankful for the chances I was given to share my talents this year. I’m so grateful for those who shared theirs with me.

This year I survived another 7 day inpatient coma and 5 outpatient treatments to help control and slow the progression of my 12 year battle with fully body/ internal RSD.

Oh and I started “allsortsofhope.com”.

As far as this life I lead, well, I owe so much of it to you, my friends who helped to keep me in this game called life yet again.

I am grateful for my new audience and as always, treasure my old one.

13 is my lucky number. I have a feeling 2013 is going to be a great year.

Stick around, won’t you?